Ten-year-old William Wienand has had a tough few years.
After a sudden and long-lasting crisis in 2019, her life changed forever.
At just eight years old, William suffered a series of treatments and misdiagnoses, until his family learned he had focal cortical dysplasia, with onset of epilepsy.
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“Our journey is not over, and I don’t think it ever will be,” said William’s mother-in-law, Stacey Candice Lefort.
“It’s a journey that William is learning to live with and we are learning to live and cope together as a family.”
Since William’s diagnosis, the family has had to change the way they live.
They all spend a lot of time at home, which means William’s room is very important to him.
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So when his mother discovered the Espace Espoir Foundation and the work they do, they immediately applied.
“We renovate, decorate rooms for chronically ill children and disabled children, for ages 2-18,” said founder Andrea Leber.
After William’s application was accepted, the Leber team immediately got to work.
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They went into the bedroom, removed old furniture, painted, added wallpaper, brought in new decor – and all at no cost to the family.
William’s first look at his new room was pure joy.
Also a little amazed at how many nerf guns he actually has and how nice they look on his new wall.
“I don’t like it, I love it,” he said.
The Leber team, made up of volunteers, took two days to complete the project.
Leber, who founded the organization in 2019, uses connections from his former job in the family painting and decorating business to reach out to painters, carpenters and other professionals, all of whom volunteer their time to work on projects.
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Their goal for William’s bedroom was to minimize inconvenience to him or the family and to make the space comfortable and inviting.
“It’s important to do this for William so he notices how much we care about him no matter what he’s been through or what we’ve been through as a family,” Lefort said. “And that we love him no matter what.”
At first glance, William felt this love very much as he settled into his new room.
Leber says that now that the pandemic is taking hold, she hopes to do at least eight bedroom makeovers a year, so she can pass that feeling on to as many kids as possible.
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